Tuesday, 20 January 2015

Wheelchair racing - first two sessions

Thanks to the good folk at Cambridge and Coleridge Athletic Club, supported by Sport England, I and a group of other full- and part-time wheelchair users have been having a go at wheelchair racing on our Monday evenings. The first week was wet and the second week was freezing but that hasn't dampened our enthusiasm! Here's how we've been getting on...
David Weir - inspiration!
Week One
We started off by learning a bit about the sport from two current wheelchair racers at Cambridge and Coleridge. It turns out that there's a lot more to it than just sitting in a different-shaped wheelchair and pushing yourself along. First off, there are two main types of chair for non-amputees like us - sitting and kneeling. One of the girls demonstrating had a kneeling chair, but the rest of us opted for the sitting position, which is more comfortable if you have any feeling in your legs - however sporadic or weak.

The first difficulty with it is getting into the chair. It's quite a tight squeeze! I'm in the smallest type of chair the club has and it's definitely not dignified getting in or out, especially given that my legs are really shaky and it's hard to poke my feet through the right bit and sit down with enough force to get my bum in the seat. Unlike a normal wheelchair, which is just a seat on wheels, these are designed so that your bum sort of sinks into a pouch. You then lean right forwards, with your feet up on a little foot rest, and get strapped in at the back, so that you can't really sit up properly.

A picture speaks a thousand words!
We also got introduced to the special gloves you have to wear. I think it is fair to say that I am not a fan of the gloves. Most of us have struggled to get them on, and it's especially tough to pull them on when you don't have fantastic strength in your arms/hands. Once you've got one on, it's impossible to do anything with that hand, so they have to be done after you're in the chair and have your helmet on. Also, you can't use a gloved hand to put the other glove on, so teeth are very helpful - fortunately this is something I've also used for riding gloves for a long time...

The idea is that you fold your fingers down and strap them in, out of harm's way (getting caught in the spokes wouldn't be great). The gloves also give you a firm surface to push against. However, they take a lot of getting used to and at the moment I just find them really uncomfortable. Moan moan moan! I'll get used to them soon.
Little fingers go in the flexible leather bit and fold into the palm, then the other three fingers in the harder section fold in and the strap comes round and fastens around the hand and over the thumb.
Pushing a racing wheelchair is pretty different to pushing a normal one. Part of this is the position you're in - in a racing chair, your body is much lower to the ground, especially the shoulders. In a normal wheelchair, you grasp the push rims around the edge of each wheelchair between your hands, starting at about 10 o'clock (or more if you're super flexible :D). In a racing chair, you don't 'grasp' at all, you just push, and you start at 1 o'clock, but aim to finish the stroke with the arms much lower around the wheel. The main thing I'm struggling to get right at the moment is the hand angle - but hopefully that will come with practice.

Me in action! I should probably have the body a bit lower, but I did have my left arm strapped across my body, which stopped me from leaning down too far. Looking at it now, I could definitely have tried harder though!
One of the things I find hardest is that when you've leaned right over it collapses the chest and stops you from breathing easily. This is so contrary to everything I've ever been taught in any other sport that I'm struggling to reconcile it with really going for a lung-busting session. I have a singing lesson on Thursday - my first since starting wheelchair racing - and I'm looking forward to hearing my teacher's take on my new breathing posture. On the plus side, he might once have played a tenor role in an opera which required him to sing massively high and long phrases whilst being bent double, but I fear that any request for help in that regard would have to come with A LOT of explaining...

Anyway, pushing with one hand was quite fun, even though it was slow and I didn't go in a straight line. I went home keen for my arm to get better asap so that I could be a bit more like the more experienced people, who were actually going fast enough on their laps to be a blur:

There's a long way to go until I'm at this stage, but I'm looking forward to the challenge.
Week Two
Our second week started with that old undignified act of getting into the chair. It was as tight a squeeze as I remembered, and the gloves were still horrific. On the first occasion I was lucky, since I only had to wear one glove (I had busted my left arm - see previous post! - so wasn't using it), but for the second session I decided that alternating pain and lack of sensation were less irritating than only using one arm, so I wanted to use two. Getting the glove on the bad hand was a right palaver because I couldn't actually use my arm to push my hand into it at all. After quite a bit of inadvertently biting off chunks of velcro I finally managed to have both hands in gloves, and could shift the focus of my complaining to how uncomfortable my hands felt in the gloves. It took a long time for the feeling to go away in my good arm, but I was relieved that the feeling in the left arm wasn't so much of an issue! It made pushing difficult, but at least it saved everybody else from all my belly-aching.

To be fair, I wasn't the only one channelling good old Mr G about the gloves!
We headed out to the track, to see if the chairs really had been set up to go in a straight line. The short answer to this, discovered on the first 100m run, was 'no'. The longer answer was that they were a lot straighter than the previous week, but that there was still the potential for the hilarity of starting in lane 1 and ending up in the sandpit.

Everyone loves a sandpit.
I soon realised that one of my biggest problems on steering was that I tried to sit up too tall as I started pushing - I was trying to breathe, and see where I was going, but all that happened was that there wasn't enough weight going down into the front wheel, so I was just jumping it across and heading off in the wrong direction. All very frustrating. Once I'd realised what I was doing, I was able to correct it, and as we all set off again for another 100m straight I felt like I was finally beginning to get the hang of it. Halfway down, I vaguely heard the coaches telling me not to lean back, and I thought, 'OK, that makes sense, that's what I thought I was doing wrong - lean forward!' I leaned forward and pushed over the line feeling quite euphoric. I then executed my expert turning manoeuvre - you lean back a bit and then go as if to perform a wheely, pushing/stopping on the rims so as to jump the front wheel across.

Here is a skilled woman doing it right.
Unfortunately, what I hadn't realised as everyone was shouting 'don't lean back!' at me was that my anti-tip bar had fallen off 50m down the track. This meant that, in my enthusiasm, I leaned back too far until suddenly, I had flipped it. I tried to push myself back up and failed miserably, so instead just waited there, lying on my back with my arms outstretched and my legs up in the air, laughing uncontrollably at the thought of what an idiot I must look (as one particularly kind-hearted friend said, 'you looked like a turtle'.) Sadly, everyone was far too busy dashing down the track in extreme concern to help me back up to take a photo of this ridiculous incident (believe me, if there had been a photo, I would have put it up here).

It was a bit like this, but I think I looked sillier.
After that little mishap, I was a bit more careful about how I turned round (unlike in a normal wheelchair, you can't just push one one side and pull on the other to scoot about). The session continued without further incidents, partly because after that I took myself off the track for ten minutes to adjust my footplate to a more comfortable position, meaning that for ten minutes everyone else was pretty much safe. At the very end we had a final 'race' and I accidentally (honest!) veered into one of the others. However, it was the friend that called me a turtle, so I didn't feel too bad.

Looking forward to next week now!

With Rebecca - who also goes to my riding group and who didn't call me a turtle!

Thursday, 15 January 2015

Taking a tumble

There's an old saying in the equestrian world: 'it takes seven falls to make a rider.' I'm pretty sure that I picked up my allotted seven (and then some!) in childhood, and until last weekend I can't remember when I last fell off a horse. The internet is full of people proudly proclaiming that in 20 years of riding they've only fallen off four times. It does make me wonder if they've only ever ridden completely bombproof horses or have never been over a jump or outside an arena, because all of my falls have occurred when one or more of the following conditions coincide in the stars:

1) riding a young or nervous horse
2) attempting something (usually a jump) that I shouldn't have
3) riding out in the countryside on a horse who suddenly decides that trees (or birds, or fields, or wide open spaces, or stinging nettles, or grass, or just about anything completely innocuous and very familiar) had suddenly become TERRIFYING.

This time it was dust. Next time it will be his own hooves.
If these things happen it doesn't mean you're necessarily going to fall off. I was always rather proud that I had quite a good seat, and that I was pretty good with young horses. However, the laws of physics dictate that if a horse does something really unexpected and dramatic, you may well find yourself briefly levitating before coming down with a thump. This is basically what happened to me the other day...

I was going to try out a young (5-year-old) horse to see if I could help with caring for her and exercising her. It sounded like a nice idea, but I knew she was fairly green, and my main concern was that I wouldn't be able to handle her on the ground with my uncooperative body. Funnily enough, I was less concerned about riding - I thought that would be OK. I was wrong! The day I went to try her out, it was blowing a gale across most of the country. If there's one thing that almost every horse hates, it's wind. You'd think that animals spending a lot of time outside would get used to wind in the same way that rain and sunshine do not cause any adverse effects, but no. Wind is terrifying. The stable yard where this horse lived wasn't too windy, so I felt reasonably confident that all should be OK.

I watched the owner ride the horse round. She looked fresh and fast, but not too skittish. The owner came back in from the arena and asked if I wanted to give her a try - of course I did! She warned that the wind was much stronger out in the arena. We swapped the stirrups over (I have toe cages to help stop my feet sliding through when I can't feel my legs properly) and I prepared to mount. My first warning should really have been that the horse didn't want to stand still to let some stranger get on board. It took a while to get me up, partly because of me but also partly because of the prancing steed! However, I did eventually get up and settled and walked gently into the arena.

Well, the owner definitely wasn't making up the strength of the wind out there - I couldn't believe how windy it was! I was trying to keep the horse calm by talking to her in a relaxed, low and smooth voice, but I could barely hear myself over the wind. For about five minutes we just walked gently round the edge, doing nothing more than letting her get used to me, and me desperately trying to get used to her. I was reluctant to use too much on the reins and the bit, because she was so young. However, I definitely didn't need any leg to keep her going. I tried to sit nice and deep in the saddle, to make my body feel heavier and more grounded, hoping that this would keep her calm.

This isn't the one I fell off - but I don't have a picture of her, so we'll have to make do with the pony who lived next door. Somehow, I think most horses would be terrified of this little chap.
In retrospect, I should probably have been a big stronger with the hands. I was riding with a very light touch, and maybe that didn't help. In fact, in retrospect, I probably shouldn't have clambered on at all! We managed to have a couple of trots, but each one got very fast and very strong, and it was an effort to get her back down to walk. Suddenly, as we were walking, there was a huge gust of wind, and the horse just bolted.

I think it was only a few seconds between the horse bolting and me falling off, but that was enough time to think:

1) Argh!
2) Sit deep
3) Keep toes up (I didn't manage this one too well, which is why I have the toe cages on my stirrups. If I'd had better leg/foot control I might have been OK, but there we go)
4) Pull back on one rein to try to bring the horse into a circle so small that she has to stop (unfortunately, the only way I could turn was to the inside of the galloping loop we were on, because that was my only strong arm - ideally you turn a horse bolting in an arena into the fence and pray they don't try to jump it).
5) Sudden realisation that nothing I'm doing is going to help
6) Curse the wind for not having died down at all
7) Brief moment to consider bailing out
8) See fence rapidly approaching, note horse's willingness to jump this if needed (there was NOT a good landing on the other side)
9) Another brief moment when you realise that this can only end one way...
10) Resignation to one's fate...
11) Thud.

I think I looked a bit like this.
Beyond the points described above, I don't remember a huge amount about what happened, because it all happened so quickly. I know that I hit my left shoulder on a fence post as I went down, and that the first thought after 'Oh, I'm on the ground' was 'owwwwwwwwwwwwwwww my arm!'. I couldn't feel my hand and I couldn't move my arm at all. Whilst I sat still for a moment checking that the rest of me was OK (it was, or at least any pain which I felt later on was masked at that moment by my arm) the owner and another rider caught the horse and helped to calm her down.

My initial thought was that my arm would probably be OK again quite quickly - I've had plenty of falls before, and although this was a very fast fall on to something uncompromisingly solid I felt that the injury probably wouldn't be too severe. As I got up to walk away (legs worked!) I realised that my phone had been flung out of my pocket - it also managed to work its way out of its case, which is a wrap around one that holds in place with quite a strong magnet. I was also pretty sure that my pocket had been zipped up, but whilst I was puzzling over that I took a few more steps and realised that my glove was lying on the ground too. It hadn't occurred to me that my painful hand which I couldn't move had had a glove on a few moments before until I saw said glove lying on the ground. Now, these are children's gloves which I'd had for years, and they were pretty tight, so I was impressed that my shoulder had been hit so hard that my glove had flown off. Impressed, but also slightly concerned, because the pain was not going away at all...

It was a bit like this, but more painful and less magical.
Anyway, off we went to hospital. Funnily enough, we went to what was being presented in the media that day as the worst hospital (especially A&E) in the country. Perhaps because of this, it wasn't very busy and I think I had really good care. The X-rays showed that miraculously nothing was broken, but it was clear that I still couldn't really move properly or feel anything properly all the way down my arm. I was told that the nerves had been mangled in the shoulder and that I needed to wait for the swelling and bruising to go down before they began to feel better. As my mum helpfully pointed out, I had at least managed to hurt the arm that was already pretty useless! I still couldn't move the arm at all. so I was given a sling and packed off home with strict instructions to rest, come back if it didn't get better, go to the GP when the swelling had gone down to get the nerves checked properly, and never to go near a horse again. Well, they didn't quite say the last bit, but I would have forgiven (and ignored) them if they had! The first bit of bruising was on my fingers (which had swollen up massively in the immediate aftermath) but that's gone down now, and now my shoulder and upper arm are taking over the revolting colour aspect of the injury.

So, tonight I'm getting back on a horse for the first time since the accident. It's the first time I've ever fallen off and not got straight back on, but I really wouldn't have been able to, and the horse wasn't really in the right state for that either (i.e., still cantering around the arena). For the first time ever, therefore, I'm slightly nervous, but I know that getting back on in an RDA environment will be safe and will hopefully give me the confidence back straight away. At least I know I followed this bit of advice:

I love how unconcerned this horse is.
This hasn't stopped me from doing too much yet, mainly because I'm lucky to have people willing to ferry me around. This happened on a Saturday, and on a Monday I went wheelchair racing. That is, I didn't actually race anyone, but I had a go in a racing wheelchair and laboriously pushed myself round an athletics track with one arm and one helpful boyfriend to help with steering. More on that soon - I need to do some work now!

This just sums it up so well!

Saturday, 27 December 2014

Olympia

This is going to be a short post because I'm typing entirely one-handed and it's really slow!

I went to Olympia and, because I was using Sopwith (my wheelchair), we got really good seats; really close to the action.

Like, REALLY close.

We saw some showjumping...

 ...and some driving...


...and the little children with their little Shetland ponies were all very sweet too.
I also managed to get some shopping done, including stuff for my family to give me - some smart clothes for riding (I didn't really have anything before) and a couple of books. There was a great atmosphere, and it was exciting to be so close to everything that was going on in the arena. In fact, the seat was so good that I was sitting next to the official photographer!

Getting around the stalls was quite tricky in my wheelchair, but I wouldn't have managed such a long day with only my crutches. In the evening I randomly started being sick but I won't hold it against the event - it was a great day!

Some day I'd like to ride here myself!

Sunday, 21 December 2014

Some racing, some hospital time, and HOME.

I've been doing an awful lot lately, or so it feels, including (finally!) some rowing! So, here's an update of what I've been up to.


Shortly after learning about my friend's death, I coxed a race in Cambridge. It was good for me to do it - in the past I've found coxing to be a really good way of forcibly thinking about something else for a bit, whilst also getting outside and being in the company of other people. The crew (a men's four) was made up of a bunch of alumni from my old college, including my boyfriend who (like one of the others) had already rowed the full 4.3km course in the morning, before taking on the shorter but not insignificant 3.4km course in the afternoon. We had hoped to represent all our new clubs in our kit, but there was quite a lot of college kit in the boat anyway! I was meant to be representing Staines, but my race number covered up a lot of the 'Staines Boat Club' on my back, and my legs aren't really long enough for the leggings to be seen clearly in photographs.
L-R: Cross Keys BC, Murray Edwards BC, City of Oxford RC, Reading RC, Staines BC. All ex-Peterhouse BC!
The crew was put together very much at the last minute: even about 15 minutes before the race, we didn't really know which boat we would be using (we were borrowing one from another club), and we hadn't settled a crew order until we all arrived at the boat house. Perhaps most worryingly, the first stroke which the crew took all together was the first stroke of our wind for  the race...so we really couldn't have had any less preparation if we'd tried! In contrast, our main opposition (another alumni crew from our old college) had had a reasonably long practice outing earlier in the day, which had in fact been coxed by me. I was tempted to try and sabotage them, but decided that wouldn't be very sportsmanlike. Instead, I used the knowledge of their weaknesses to urge my own crew on!

Over the course, we did reasonably well, considering that two of the four rowers were exhausted before they started (and one of those rather worse for wear, being a few pints down...) and one of the other two began having an asthma attack about halfway down the river. Add these things to the pre-mentioned facts that a) we hadn't had ANY practice and had no race plan and b) we'd never sat in the boat before, and we felt pretty proud to come in seven whole seconds in front of the other crew! Sure, we weren't fastest out of the whole field, but we did reasonably well nonetheless and given that there could have been NOBODY less-prepared than us, I think we were pretty outstanding. :)
It says a lot that this is the best photo of us from the dinner that followed the race. Now in matching blazers!
The next weekend, I had two races in the annual Cambridge Christmas Head – a fun race where people dress up and try to win whilst trying to appear that they aren't taking it too seriously. Firstly I was coxing a women's eight, then I was rowing at bow in a mixed four. The first race went OK, although I was a bit annoyed that my line on the first corner was messed up by a fisherman standing on the other side of it. I'm not annoyed that he was there – I went nice and wide to avoid him, because I have no interest in damaging his lines – but it was a shame that he was on that corner, since they were using that corner to judge for a coxing prize! Never mind; we had a pretty good row despite that corner, and despite the fact that the timer was broken on the cox box, and halfway down the course I got very close to permanently locking the iPhone that my 7-woman had lent me to use as a timer, so I had to give up on trying to find times... It was the first race in our newly-refurbished boat, so that was quite exciting.
Saving energy.
After that, I GOT TO ROW! I was rowing at bow in a college boat – one other girl rowing, two chaps, and a girl coxing. We'd put the two chaps in stern pair and the girls in bow pair, mostly so that I could have the maximum possible leverage for pulling the boat around or helping it go in a straight line (I was by far the weakest person in the boat, which doesn't bother me – I am disabled!). It was also quite good for me to row on bowside instead of strokeside, since until this summer I'd never done that, and it's something I'd like to be able to keep up with. Again, we didn't win but we had a good time and for me it was just nice to get out in a boat and be one of the ones with an oar in my hand instead of just holding the rudder wires (which I do also enjoy, of course). 
Rowing up to the start - I'm furthest away from the camera!
After the race, I came home for Christmas, which feels really good. I can now play with the dog all the time and generally just relax a lot more. Nevertheless, I've done a fair bit of academic work, especially after I went to my Masters graduation a few days ago and learnt how much work one of my fellow first-year-PhD-students is doing (or claims to be doing!). 

Apart from that, I've had two other interesting things happen, one of which is very short and can be imparted very quickly – we have new jackets! In honour of my brilliant coach, the 'Cambridge Para-Rowing'  jacket is now A Thing, and they look awesome. I designed it for her, then realised how much I would regret it if I didn't get my own one. Then that turned into another Cambridge para-rower getting one too, and another coach...so now we will all look spectacular.
Behold the glory!

The other thing is a little longer. I went to see an Ehlers-Danlos specialist in London – an appointment I've been waiting for for about a year! She was brilliant and just understood everything, although I'm now annoyed with myself that I didn't remember to mention a few of the more random things. I ended up having extra blood tests and X-rays done and (I hope!) I am now on a waiting list for some inpatient rehab, which will teach me more about EDS and about how to live with it, as well as giving me lots of intensive physiotherapy, hydrotherapy, and all sorts of other therapies. It sounds like hard work, but definitely something I'd like to do. The rehab is at the Royal National Orthopaedic Hospital, so they clearly know what they're doing. I expect it'll be quite a long time before I move to the top of the list, but it does make me feel more positive that there will be something there to help me cope.

Other than that, health has been strange. I'm much more wobbly on my legs at the moment than I have been in a while, and I've had one night of feeling (and being) very sick, which makes my heart go far too fast, which makes my arm ache until it all calms down, and makes me feel dizzier than usual. I've also had quite a naughty left knee, which has now popped in and out of place so much that it's all rather bruised and looks a bit manky now, to be honest! Still, being at home is good for me and I'm doing my best to be sensible and to look after myself.
Recently I've also been to the London International Horse Show at Olympia – it was brilliant, of course, but I will have to save that for the next post as my fingers and wrists are definitely giving up now. I will leave you with a picture of Rosie, who has suddenly discovered that this brown blanket is heated.
Dog beds are so unnecessary when you have a heated blanket with a foot underneath it.

Monday, 8 December 2014

Probably the longest and most serious post I will ever write. It's worth reading, though.



A few days ago, I received some terrible news: one of my close friends from school had killed herself. It got me thinking about suicide and depression, and people's attitudes to those who take their own life. Jo wasn't the first person I knew who had done this, and unfortunately I doubt she'll be the last. The inevitability of suicide continuing to be a part of human life is something that I feel needs to be explained, and I hope that this post (which will, I think, mention neither horses nor boats) will shed some light on suicide for those who struggle to understand it.

The first thing to say is this: unless you have been suicidally depressed, you will probably never understand how it feels. It's not like feeling sad, or hopeless, or lonely, or unloved, because although all those things may contribute the sum of the negative feeling is so much more than the component parts. Rather, you become the personification of all that is wrong with the world, and the only way to cleanse the world and to help your friends and family is to remove yourself from life itself. Therefore my first point is this: if you want to understand suicide, you must either have experienced the sincere intention to kill yourself, or you must accept that, whilst you will try to put yourself in someone else's shoes, you will never quite grasp that last little bit. Acknowledging that learning about suicide and truly understanding it are two different things is probably the most crucial step – too many people put their own values on life into the head of someone who, quite clearly, believes something very different, without appreciating that they may as well be expecting a fish to fly.

So, point one: do your best to understand, but realise that without being there yourself you will never fully get it. If you realise that, you will understand more than those who pretend they do understand.

The second point is a difficult one, and it rests on the idea that suicides can be prevented. After someone takes their own life, it is natural for those left behind to feel guilty, frustrated, and angry that they weren't able to prevent it from happening. People feel that they 'should have done more', or that if only they had made themselves more available to the person in question, then that person would have known they could talk about it instead of killing themselves. We feel that because suicide is a deliberate act it is preventable. We feel that if only we had loved the person better (made our love more known) then it would never have happened. It is our fault that the person died.

Suicide has nothing to do with a lack of love (which I will mention again in our third point below). The person who kills themselves does not do so because they are not loved. Although depression robs you of the belief that anyone could love you, it does not necessarily follow that those who commit suicide have done so because they do not feel loved. The simple fact is that all the love in the world cannot stop the progression of an illness as physically and mentally devastating as depression. We never consider ourselves to be guilty causing death through a lack of love if a friend or family member dies of cancer, or in a car crash, or of old age. Some things in life simply take their toll on the body in a way that no amount of love can reverse. Like a tumour, a traumatic accident, or nine decades of a life well-lived, depression is one of those things. People who kill themselves do not die of suicide, they die of depression. Depression is the cause of their death, and suicide is merely the means. Depression is not cured by love (would that it were!) and it is not caused by individuals. Unfortunately, it is a simple truth that loving someone (even with all your heart) has absolutely nothing to do with whether or not they kill themselves. This is because depression completely and utterly robs you of the belief that you are loveable, to the extent that eventually you simply know with all your heart and mind that no-one could ever love you. Note that this is depression causing this belief, not any lack of love from others.

The other idea that argues that suicide is preventable rests on the notion that if you are with someone, day in, day out, twenty-four hours a day, you will prevent them from killing themselves – basically, if you put them on suicide watch and enforce it yourself. It is possible that if there were someone watching that person the entire time then they might find it hard to go through with a suicide. Practically speaking, however, this is rarely an option. Those who commit suicide tend to do so after quite long thought and deliberation. One final thing might be enough to push them over the edge, but rest assured that it will have been in their heads for a long time. Under these circumstances, it's easy to bide your time until you're away from other people. Only stringent 24-hour surveillance for a prolonged period of time (months; years) can prevent a suicide in this sense. This may sound like a fair price to pay, but I believe that it is ethically questionable to impose that kind of sanction on an individual, however sick they are. So, here we go – you can love someone and you can go for a drink with them, give them a big hug at the end and tell them to call you if they feel slightly bad, but that doesn't mean the person won't go home that night and kill themselves. It's not because you haven't tried – it's because humans are autonomous creatures who have the right to make independent decisions.

'I should have noticed' is another cry from those who are recently bereaved. 'I should have noticed something was wrong – why didn't I ask?' Well, usually, people do notice, but the depressed person doesn't want to talk about it (maybe they just would rather ignore it, maybe they think they don't want to bother you with it, maybe they just feel they've got it sorted in their head already). You can't force anyone to tell you how they're feeling or what they're thinking. Also, you cannot expect to predict whether or not your friend or relative is feeling bad – people with depression are experts at hiding how they truly feel, and the day that you think they're beginning to get better could be the day they kill themselves. In fact, it's often the case that having made the decision to bow out of life the depressed person does behave more cheerfully – just as you would on the last day of work before the holidays, when you know that there is an imminent end to the misery.

Point two, then, is this: it is very, very difficult to prevent a suicide. The fact that suicide is (usually) deliberate does not make it preventable.

I said I'd talk more about love, and here we are for point three: the vast majority of people who commit suicide love their friends and family with all their heart, and believe that they are doing the best thing for them. It's often believed not only that friends and family did not love the depressed person enough, but also that the person who kills themselves cannot love those who are being left behind, or else they would not be able to put them through such misery. This is one of those classic occasions when people who have never felt suicidal try to put their own rationalities into those who are suicidally depressed: 'they can't have loved me or they'd never have put me through this pain.' Here's the alternative view...

When you are depressed, the one thing that you can be sure of in life is your own all-encompassing inadequacy as a human being. More than that, you are the thorn in the side of everyday society; you make your friends depressed through your own lack of enthusiasm for life; you upset your family by being unable to function properly; you are a burden on others (at best a worry, at worst a millstone tied around the neck of all those who come into contact with you); everything you touch is contaminated by your own lack of worth; and the only way in which you can improve the situation for everyone else is to remove yourself from it.

When you are depressed, you believe with all your heart (and you know in your head) that you are an awful person. You know that you don't have the right to live. You know that you don't have the right to love. You know that everybody you care about so dearly would be immeasurably better off if only you would just die. You love your family and your friends, and you know that your continued existence is agony for them. You know that the only way to ameliorate this situation is to die.

Suicide, therefore, is an enormous act of love towards others. You kill yourself not because you are giving in, or because you are selfishly thinking of your own needs (although I will touch on this aspect below) – rather, you kill yourself because it is the only way you know of making life better for those people you love the most. Please notice that I have used the verb 'know' rather than 'think'. Obviously, you as someone left behind will argue that this person is wrong, and that killing themselves is the worst thing they can do. However, there is absolutely no doubt in the depressed person's mind that they are doing the right thing for other people. Since there is no doubt about it, there is no other option. You are not worthy of life, but the people whose lives you are ruining are. The only acceptable thing to do is to end your life.

So, point three: suicide is not about selfishly ignoring the love of others, or about not feeling love for others. Suicide is an expression of the love you have for those closest to you. If that sounds warped to you, then that's probably because you're lucky enough never to have felt suicidal.

Next, I'd like to argue that suicide is a personal choice, and that other individuals do not necessarily have a right to expect people to live on through immense distress and illness. If a society can accept that euthanasia is, under certain circumstances, ethically and morally justifiable, then it should be able to accept the same thing of suicide – a person's right to die and their choice to die belong to them and not to others. I personally think that, leaving depression aside, it is very difficult for people who are left behind following a deliberate death, because arguably the deliberate death is most beneficial for the person who has died, and more difficult for those who have to continue their lives. Arguably, it is selfish to leave behind a family and to choose the option-of-no-return of death.

However, if we bear in mind everything I've mentioned above – that you are severely physically and mentally ill; that you do not believe yourself capable of being loved; that you choose this option out of love for others, and so on – then it's a slightly different picture; one in which it becomes selfish to expect the person to continue to live. Let me talk about how it feels to be suicidal, and you might begin to agree that these are acceptable grounds for self-euthanasia.

Suicidal feelings very rarely come out of nowhere. The dramatic image of a jilted or bereaved lover being overcome with emotion and killing themselves is nothing like the general wearing down of depression and the reality of suicide. Before anyone kills themselves, there are usually thoughts of death which have been bothering the person for a long time. At first, suicidal feelings may be scary to the individual experiencing them. Over time, however, they may become mundane, and eventually they are a welcome crutch. Most people start their lives with a healthy dose of self-preservation coursing with the blood through their veins. In some people, however, continuous thoughts of suicide gradually wear down the resistance to death. Death ceases to become something to be avoided at all costs and becomes a viable, attractive alternative to a continued miserable life.

But just how miserable is that life? How bad do things have to be to make suicide a genuinely attractive option?

Depression robs you of everything. It robs you of the ability to stay awake when you need to or to sleep when you want to. It robs you of the ability to spend time with others or to cope on your own. It robs you of your personality and of your memories. It robs you of hope. It robs you of the ability to feel happiness, optimism, gladness, gratefulness, contentedness, a sense of community, or excitement. At the same time, you become so numb that even sadness and despair become mere background distractions against an existence in which nothing can touch you, because you're living a life so isolated from all aspects of the outside world that you cannot even perceive them properly. If you are put on anti-depressants, it is likely that you will start to feel things again, yet in a cruel paradox it is almost certainly the negative emotions that will catch up with you first. If you are feeling suicidal, it is highly likely that the positive feelings have been strangers to you for a long, long time – so much so that you wouldn't even recognise them.

So far, so good – most people accept that depression can do this. But there's more.

When you're really, really depressed, you cease even to be alive in any conventional sense. Here's what I mean: you are unable to hear what people are saying to you even when there is no-one else in the room and you are looking straight at them. You are vaguely aware that they are there and that their mouth is moving, but what is said is a complete mystery to you. Your brain is completely unable to process the sound. It's not even that you don't understand what's being said, as if they were speaking a foreign language or as if you were an animal – it's that any sounds made by the other person do not even reach your consciousness.

You look at things around you and you don't know what you are seeing. You look at a table and you're vaguely aware that it has a function, but if someone handed you a plate of food you'd be as likely to place it underneath the table on the floor, or on a bed, or a windowsill, as you would to place it on the table in between a knife and fork. This leaves you with a sense of utter bewilderment as you look around you at the world, not knowing what it is there for.

People might think you look the same and they might, therefore, expect you to function as normal. You are effectively blind and deaf – how can you respond to them? And since you cannot hear or see, how can you express yourself adequately, in the way that they expect? How can you form words in your head when your mind has simply lost the ability to form words even into thoughts, let alone to translate these thoughts into sound? Have you ever experienced your mind being so utterly numbed (literally, depressed) that you could not even formulate the simplest thought? You will forget to eat, and you will be so hungry that you are in agony, yet you are completely unable to eat because you simply cannot associate that pain in your stomach with hunger, and your mind cannot work out that hunger can be alleviated by eating. You'd think that some instinctive drive would kick in to make you eat, but it's astonishing how much these things rely on language and thought processes.

As this process goes on, you become increasingly isolated. You cannot speak to people or even begin to explain how you feel. You cannot even look at them, because you don't know how to: when a person says, 'look at me', they usually mean 'look in my eyes' – but you forget this; you forget that eyes are meant to meet, so even if you could understand them saying, 'look at me', you would be unable to look in their eyes unless it happened by chance (and believe me, when your head aches with depression, raising your eyes is nigh-on impossible). People give up on you because they don't understand and because they get frustrated by your lack of communication – not all people, although you might wish they would. You get frustrated too, yet you're not sure why – it's only when you're feeling better that you wish you could have told people how much you loved them, how the only emotion you might possibly feel was sheer terror, and how you just wanted to make them happy.

As you become isolated, your mind plays tricks on you. It ceases to get sensory input from its usual sources, so it makes its own (this happened to me, but I have bipolar which complicates the picture anyway). You hear things that aren't happening, but you have no way of distinguishing between what is and isn't real because you can't trust your eyes/ears or your mind. You see things which some remnant of logic in your brain tells you can't be right – 'have wardrobes always been able to walk?' – but you're too tired to do anything about those things that don't really make sense – and anyway, who are you to decide what does and doesn't make sense? Gradually, things start to happen that scare you. You hear screams that come out of nowhere, you hear sinister voices that set your heart racing. You see huge objects flying towards you. You become afraid to leave your room or your house. You become even more isolated. Thoughts come into your head that you shouldn't take your pills. Then...thoughts come into your head that you should take all of them. Fortunately, at this stage, those thoughts still haven't really been translated into words, so you go through the motions of what you've always done, unable to make a decision.

Depression robs you of the capacity to make decisions. How can you make a decision, when you are surrounded by so much that is not real, and when those things that are real cannot be perceived any differently? More importantly, you realise that there is simply no point in making any decisions. Nothing changes. Life stays as awful as it always was. What decision could I make?

You might try to struggle against all this. You might try to work – but you'll find you can't read. The words move on the page, they move around in your head, you read them incorrectly and you give up after five frustrating minutes. You decide to go for a walk, but you're frightened by the world around you and you end up back inside. Life ticks on by as you pretend to everyone else that you're still alright. Life ticks on by, empty but for your increasing sense of desperation mingled with something which can only be described as the most profound feeling of emptiness that it swallows itself up, consumes you, and defines you as empty. You are a void in nature. You are nothing.

And then...if you are nothing...why carry on living? Your mind suddenly seizes on this with unusual clarity. Why am I still living? Am I still living? Should I die? Would that be better? It can't be worse?

And, for the first time in a long time, you find a thought which is articulated clearly; which gives you hope – there is a way out. There is a way to feel like a human again.

This hope now becomes a talisman. It supports you in the dark moments, as you realise that there is another option there. It becomes something to cling on to, and in the better moments (which, surprisingly, are now actually occurring for the first time in months, thanks to the introduction of a get-out clause) it becomes something to mull over more seriously.

Most people who are suicidal think about it a lot before committing the act (or attempting to do so) – often for years. The simple fact is that suicide is an extremely attractive option. There is usually something to push you over the edge. It can be different for different people, but here's an example of what might happen.

You've been having a bad patch. You have everything ready to go, should you need it – a bag of drugs, for example, or perhaps a knife. Maybe you've written a letter, maybe you've made some attempt at a will. It's all there in the background, for now, just biding its time. Maybe you'll never need it – but it's good to be prepared just in case.

Then you have an even worse patch. You look at that bag of pills; at that knife; at that bridge over the motorway; and you think 'if only'. 'Please.' 'One day...'. 'I can't take much more of this.' You know it's final; you know it's a last resort. That's why it's such a fantastic idea.

Finally, something happens – an argument with a friend or spouse (although this can be unlikely – if you're really depressed, arguments tend to be one-sided since you can't really form adequate retorts); a terrible day at work; a horrible story on the news. It's enough. You look at your bed, and you contemplate lying down for another sleepless night, and you realise: 'I can't wake up one more time. I simply can't do it. I can't face waking up, turning off the alarm, and having to face the day. I simply cannot face waking up and realising that I'm still here and that things are still this bad. I cannot face waking up and feeling so utterly, desperately and whole-heartedly sick with myself that I physically vomit. I cannot face that moment where I lie with my eyes closed, hoping against hope that I've died overnight, but knowing that when I open my eyes I will still be here, and none of this nightmare will have ended.' Like those who cannot sleep for fear of a recurring nightmare, you cannot wake up in the knowledge that the illness which has made you a mere shell will continue to haunt you through every second of the day. Waking up is your most feared part of the day. Waking up is your most hated part of the day. Waking up alone makes you want to kill yourself, every single day. You realise that you cannot put yourself through it one more time.

I am now running out of words to explain how it feels. I can't say that you feel really sad, or down, or unhappy. You don't feel any of those things. The point of depression is that you feel nothing, for so long that you cease to be a person – and then, is it really death, if you've already stopped existing? Surely the death happened long ago? Like those who care for elderly relatives with dementia, they know that the person they loved has, in some way, disappeared long before physical death comes round. Depression is the same. True, it may be more reversible than dementia. But people with depression have tried. They've been for a walk, they've eaten healthily, they've tried to sleep at regular hours, they've made time for themselves. They've taken the pills, they've had the electro-convulsive therapy, they've sat through endless sessions of cognitive behavioural therapy, and they've promised time and again that they'll stop self-harming. But these things haven't worked.

Depression is unlike almost any other illness, because it completely robs you of the ability to help yourself. You cannot reach out for help. You do not necessarily want to accept help.

Do you remember how I said that you stop making decisions, and that you stop thinking clearly? That thought 'I want to kill myself' is the first clear thought you will have. The decision, 'I am going to kill myself' is the first (and easiest) decision you will have made in a long while. That is why it feels so good.

Once you've made the decision, you feel something close to a recovery – elation, really. Soon, you will be free! Imagine looking forward to the best holiday of your life. Imagine it was a holiday forever, but not in a way that you would ever get bored of it, or wish you could go home – because actually, home was not your home anymore, and never would be. It had ceased to be home a long time ago. You weren't welcome there, and you didn't know anyone there. You hated it there, because everyone there abused you; called you names; said you were worthless. You realise that you don't ever want to go back there, and then you realise – that place isn't home. Not anymore. You're not going on holiday. You're leaving the worst trip you've ever had, and you're going home – where you're loved, and valuable, and safe. You'll be there forever.

That's how it feels. A bit. Any attempt to put this into words will be inadequate, but hopefully this explains some of it.

So...maybe suicide isn't so selfish. As I've said, most of those who commit suicide will believe whole-heartedly that they're such terrible people that the world (and, most importantly, their families and friends) are better off without them. Equally, they are escaping a world and a life which have just become unbearable. It is very difficult to argue with that.

In this post, I have tried to explain the truth (as I see it) behind some misconceptions about suicide. It leads us here: suicide is not selfish. Suicide is not caused by anyone. Suicide is almost impossible to prevent. Suicide is a positive choice, chosen not as a last resort but as an attractive option. Despair comes into it, but so does hope – suicide is not driven by despair, but by the hope that things will get better if life ends. This is very, very hard to understand if you haven't felt suicidal, but it is true. People see suicide as despair and say how sad it is that the person felt that bad. Yes, it is, but they felt better once they realised how fantastic it would be not to feel terrible all the time.

Finally, there are the religious beliefs. You can believe what you like, but I believe in the salvation of souls – even of those who 'commit' suicide. That gives me, as the person left behind, some comfort. My friend is safe and content at last.